Hi Darmeen,

I know what you're going through.  These things can be so worrying.  When I was pregnant, the blood work screening done at 12 weeks came back with a higher than normal risk of down syndrome.  I chose not to get an amnio done and of course I did a lot of worrying, but eventually I calmed down and realized that the odds were definitely in my favour that everything would be fine.

Then I had complications at 6 months and they did another detailed ultrasound and found that his legs and arms were a bit short which could indicate a genetic disorder.  Then I really worried.  I considered getting an amnio at that point, but my doctor talked me out of it and I'm so glad he did.  The risk of having a premature baby just to put my mind at ease just wasn't worth it.  Ethan is perfectly healthy.

These tests just indicate a very small possibility that something may be wrong.  In the vast majority of the cases everything's fine.  In the process of my worrying and obsessing I came across many people whose baby's had these cysts and the babies were born totally fine. 

It's your choice whether or not to get the amnio done.  I can certainly understand the need to know.  However, you should know that the odds are definitely in your favour that everything is going to be fine.

I don't plan to have genetic screening done next time.  It caused too much unnecessary worry for me.

Thanks Collen and Randi for sharing your stories! This community is awesome!

I have decided to not worry about it because there is really nothing I can do but wait. My OB ordered an ultrasound for me in a few weeks' time. So we'll see if the cyst has changed or disappear somehow.

p.s. I did read that a lot of normal healthy adults also have cysts in their heads.